I was diagnosed with EOE in July. Pantoprazole made it better for a few months and now it’s back to bad. Can anyone here relate with symptoms and what can help?

I first went to my doctor for pooping issues. The poop just don’t look normal and I have this weird pressure in my rectum at night as if I have to poop again. I have bloating problems as well. It’s not that I am in pain but definitely in discomfort. Stress does play a huge role and I have anxiety.

I got a colonoscopy and endoscopy. They found nothing but eosinophilic esophagitis. Nothing in the rectum area or anything in the butt. I don’t even have a single polyp in my colon. My stomach was completely normal and clear. I was told stress plays a huge role and a dietician was recommended. I also did an ultrasound on all my organs and everything was healthy.

I was prescribed pantoprazole for 3 months (one every day) and repeat 3 more months if needed then slowly wane it down. I did the full 3 months and all the weird stomach issues had disappeared. I slowly waned down to nothing. I was good for maybe 2 months then the symptoms started to come back again.

I then got back on pantoprazole but it’s not working this time. The weird symptoms of bloating and feeling I need to poop (sometimes I can force something out) and something I can’t. I suspect it’s just gas. The sensation eventually goes away.

The only difference between this time from last time is I am burping and farting a lot more. I actually feel the trapped gas near my chest area. When I get the sensation that there is pressure in my rectum area…I ignore it (instead of sitting on the toilet) and the sensation goes away after multiple farts.

This is insanely annoying. I love food and I find myself with low appetite due to stomach stress and partially bloating.

Can anyone relate with my issues and what helped?