extra-intestinal symptoms and flares

Question

Hey everyone,

I don’t feel like I see or hear much discussion around extra-intestinal symptoms and flares . I have had a pretty good experience with a jpouch for almost 3 years after having an ostomy for a couple years. Some doctors seem to imply that those surgeries cured my UC, but I feel that I still supper from inflammation throughout my body, and it seems to act out as flares at times.

Common symptoms are:

Whole-Body Fatigue: overwhelming sense of fatigue that engulfing the entire body.

Joint Pain: Joint pain in hands, knees, elbows, neck.

Headache and Brain Fog.

Muscle Aches: Muscles throughout the body can ache and feel sore.

Skin Issues: mostly eczema on the face, forehead and hairline.

Irritability and trouble being motivated.

I try to stay very hydrated and eat well, stretch and do weight training when I have the energy. But it’s all a struggle.

Do other experience this? What things do you do that help keep these extra-intestinal flares in check?

Posted Oct 9, 2023, 8:22 PM UTC

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