Is EMG testing required? Experiences?

Hi all. Long story short, pain management Dr, PT, and neuro say I have cervical dystonia. But my neuro thinks it’s a good idea to see a Movement Disorder Specialist before Botox to confirm it’s “primary.” Now, not that I think that’s a bad idea to see a MDS, I totally agree but it took me 8 weeks to get in with neuro and will take another 2-3 months to get into MDS. And I must admit, I am very afraid they’ll want to do EMG. I don’t know why I am anxious about that cause I’ve had tons of surgeries and tests (including a bone marrow biopsy!) that have never made me nervous cause I have a high pain tolerance. But for some reason, I’m afraid of this.

  1. Have people seen an EMG being necessary for diagnosis? My CD is almost constant but what if I’m not in a flare and the test looks normal? Is that possible?
  2. If you have, how was your experience? And please be brutally honest 😊.
  3. I have a follow up with my neuro first next week. Should I push for a trial of Botox at least? I’m on medical leave and just want to try SOMETHING to make progress. Thanks in advance! All opinions welcome!

Posted Nov 1, 2023, 4:05 PM UTC

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