My story

Hey everyone! I’m a 19 year old female, who like everyone here is scared of A**. It all started in June when I noticed my elbow would twitch before I went to sleep. Then I had severe cramps in my arms and legs and stiffness. I went to the ER and they referred me to a neuro. Went to the neuro and did some clinical exams and ordered an MRI for brain and cervical spine. I had a brisk Hoffman sign. By the time my MRI was scheduled I had searched up my symptoms and found this disease. And went down a loophole. I later went back and my MRI was clear and the neurologist said I had anxiety. The only thing found was a low vitamin D level of 8.1. I wasn’t convinced so he did an EMG on both my arms and legs and said it wasn’t ALS. But I’m still twitching however it’s now everywhere on my body including my tongue. My left arm feels heavy and my grip strength feels weak. My fingers also feel very stiff and I get occasional cramps. I’m convinced I have this diseases and that the EMG was too early. I have an appointment with a GP soon and I’ll ask him to transfer me to another neurologist. This has taken a huge affect on my life went from an A+ student on top of everything to barley even showing up to my classes. I have no hope and don’t know what to do. I’m constantly doing strength tests by opening bottles and trying to lift heavy items. Tying my shoes and buttoning up items my clothes to see if I lost function. I feel like I have because I can’t open packages like I used too. I don’t know but I’m just really scared.