What’s best for a kid with neurofibroma?

My almost 9 year old has NF1 and he asked me to scratch his back tonight. I noticed a rope-like moveable knot about .75 inch on his back by his shoulder blade. It doesn’t protrude at all.

It’s not bothering him aside from it itches. What’s the best thing to do? Just wait and watch? He has annual visits to an NF1 clinic.

Also- I never found out if he was a partial or full deletion. He just easily met criteria with CALs, CPT, and lisch nodules. Is genetic testing actually beneficial? How so? It seems treatment is the same either way, but maybe not.

(Has congenital pseudarthrosis, optic glioma, ADHD, and some minor learning difficulties)