Newly Diagnosed!
I'm about 19 years in to my NDPH and just found out that's what it is today. I was told it was a migraine by all the doctors I saw 18-19 years ago, and they just threw different drugs at it. Obviously that did not work. And I kind of gave up and decided to live with it after a few years. But now I have a new neuro and am trying to see if anything helps. He just told me today - that's not a migraine it's NDPH. Which I know shouldn't be exciting but anything is better than being lumped in with all migraines! It makes me feel like less of a medical freak. I'm thinking of trying CGRPs but trying not to get my hopes up. I have vestibular symptoms, too. Take meclizine (very effectively) for chronic dizziness.
Posted May 10, 2024, 12:40 AM UTC
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