r/dementia•
Grompson

Mom (67) diagnosed today with FTD

So...yeah. Looks like we're joining the club you never get to leave. Her anxiety has been worsening for a couple of years now, with the language area of her brain being by far the most affected according to her neurologist. I haven't sat in on appointments yet (my dad has), but from what I'm reading it sounds very much like PPA and very little like bvFTD, which I guess I should be thankful for?

I've always had a complex and somewhat difficult relationship with her, though I believe her to be a good person who struggled a lot with mental illness and being an isolated SAHM when I was a child. As a SAHM now myself, I empathize even if I personally parent and behave differently from her. I have suffered an immense personal loss in the last few years and she was not overly available to support me, and now I wonder if that was entirely her "fault" which leaves me feeling guilty for that resentment. We all live in a quasi-rural part of Ontario so initially her symptoms were handwaved off as "COVID vaccine, it's happening to everyone". Obviously, it was not.

Sorry if this is a vent rather than a coherent question, but I feel like maybe you all can understand. She has had a hoarding disorder forany years so I am mourning the loss of time she spent not having my young children to their home, all that stuff that was sooooo important to keep. And now the clock is ticking.

Posted Nov 12, 2024, 8:14 PM UTC

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