Anyone on this sub have NF2?

I’m aware there are people out there who have nf2 or MF in general but a lot of the times I just feel like i’m literally the only one. This disease has robbed me of so much. I had dreams/plans for myself and those dreams were destroyed. I lost my hearing, my eyesight,the ability to move my face/make facial expressions and my L hand (dominant) is deformed in a claw like shape. No one understands me and besides living at home w my parents and younger siblings my family isnt supportive...