those who were on and then went off ozempic— what happened?

hey folks! i was diagnosed with BED in august of 2024. i have suffered with it for roughly 3 years now.

i have always had a lot of issues with weight gain, and i also have some separate health issues that mean i pretty much cling onto every pound. we are trying to figure out if i have cushing’s disease right now, PCOS, or some other metabolic issue. my bingeing is significantly reduced through treatment, but i am unfortunately still very morbidly obese. i am 5’0” and 215 lbs. that’s a BMI of 40. shockingly, my BP, blood sugar, A1C, and cholesterol are all ok, but i have a hard time moving around when i was previously very active. my joints hurt. it sucks. etc.

i have been debating going on ozempic for some time now, and consulted both my therapist and psychiatrist about it. they said they both would not personally recommend it, because they said when patients with BED go off the medication, it can make the binge eating come back, or even come back worse. they also said they have some patients who have gone off of ozempic and didn’t have BED before, but developed it as a result of the effects of switching off the medication.

so if you were on ozempic for a while and eventually went off of it, what was it like for you? did you have BED before that, and if so, did going off of it just make it come back? i have put a lot of work into trying to recover from it, and i am very worried that work will be decimated the second i go off of it. i have a long way to go still, but the worst months of my binges were hell on earth, and i will not go through it again. i do not think i will make it out alive, quite frankly.

even though i have a decently clean bill of health (save for the weight gain and chronic fatigue issues), it is only a matter of time before this catches up to me and i start suffering the physical consequences. i feel a bit stuck between a rock and a hard place— any advice or anecdotes are much appreciated.

thank you folks!!!