TTC after Encephalocele

Hi all, hope everyone is okay. I sadly lost my baby girl at 22 weeks and 2 days on Valentines day this year due to a neural tube defect called encephalocele.

I was wondering if anyone had any stories they could share of successful outcomes after ttc again? This was my first pregnancy I am 33 and my partner is 37 and she was planned and very much wanted. Did you do anything differently afterwards?

I am finding myself in a bit of a limbo stage at the moment as we have no results back from our bloods, the amnio and we also opted for a postmortem to find out as much as we can for future pregnancies/other couples who find themselves part of this shitty statistic. I am hoping to try again in the near future and have already started a 5mg folic acid prescription, taking a b12 tablet daily and still taking a prenatal.

Thank you xo

Posted Mar 8, 2025, 12:50 PM UTC

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