Eds and hysterectomy
I have been refused genetic testing for my eds and have been diagnosed with heds, i recently had surgery and after 6 years of being told nothing was wrong they found stage 2 endometriosis.
I don't want kids, I have 3 chronic life long disibilitys that I only got diagnosed with in the last 2 years, they are genetic.
I honestly just want to get either a hysterectomy or the removal of my ovries, but I can't find practically any information for people with eds.
I'm going to ask to be re-referred because it is extremely important for me to know what type I have in order to make informed medical decisions.
Anyone have any experience with removal of reproductive organs ?
(I'm in england and due to being unable to work can't afford to go for private tests, otherwise I would do it in a heartbeat)
Posted Mar 8, 2025, 12:56 PM UTC