r/eds•
Angel_Cakes-

Eds and hysterectomy

I have been refused genetic testing for my eds and have been diagnosed with heds, i recently had surgery and after 6 years of being told nothing was wrong they found stage 2 endometriosis.

I don't want kids, I have 3 chronic life long disibilitys that I only got diagnosed with in the last 2 years, they are genetic.

I honestly just want to get either a hysterectomy or the removal of my ovries, but I can't find practically any information for people with eds.

I'm going to ask to be re-referred because it is extremely important for me to know what type I have in order to make informed medical decisions.

Anyone have any experience with removal of reproductive organs ?

(I'm in england and due to being unable to work can't afford to go for private tests, otherwise I would do it in a heartbeat)

Posted Mar 8, 2025, 12:56 PM UTC

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