Struggling with Lichen Planus & Lichen Sclerosus

I’ve been dealing with oral lichen planus (OLP) for about 2 years, and skin lichen planus (LP) and genital lichen sclerosus (LS) for around a year. I have seen dermatologist exactly three times, but honestly, I feel like I’m stuck in a cycle where nothing really improves.

One of the biggest frustrations is that Tacrolimus hasn’t been available for the past 3-4 months, making it impossible to follow the treatment plans my doctors have made for me. It’s exhausting and makes the battle against flares feel never ending.

On top of that, I have Köbner’s phenomenon, so LP keeps appearing on my tattoos and even on the tinyest scars. I’d love to know if others have experienced this, how common is it to have OLP, LP (with Köbner’s) and LS ? And does anything help prevent it from happening?

How is someone suppose to manage with the mental toll of constant flares and setbacks?