Questioning my diagnosis- is it possible I have HA and not PCOS?

General/Advice

I was diagnosed with a PCOS after a ton of testing doctor's visits, including multiple obgyn visits, multiple ultrasounds, an endocrinologist visit, tons of bloodwork, and even an MRI.

Here's why I got diagosed with PCOS: missing periods for several months, slightly enlarged ovaries with "sting of pearls" cysts. I am often fatigued and hungry. I don't get great sleep.

Here's why it doesn't make total sense to me: According to my bloodwork I don't appear to have insulin resistance. I have low testosterone. I am not overweight. I do not have excessive body hair or facial hair. My FSH and LH levels/ratio are normal.

And here's why I think it might actually be hypothalamic amenorrhea (HA): my periods stopped when I was super stressed and I was at my lowest body fat percentage. I also do exercise a lot. I also have very low estorgen and progesterone.

Except here's why that doesn't make total sense either: I have slighly higher end of normal levels of DHEA-S. I did a progesterone challenge and had a tiny bit of spotting after a month.

Is my diagnosis correct? Am I overthinking? Best course of action?

Posted Apr 1, 2025, 11:01 AM UTC

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