Learning how to pace

Discussion

Hi! I was just wondering if anyone had any advice on pacing, learning when their body's are telling them to rest, and actively managing/preventing flares. Any tips and tricks are helpful, including ones I could use in public more discreetly because I'm not sure why but I get embarrassed if anyone other than people that are close to me and know about my health problems sees me managing it in obvious ways. I don't like drawing attention to it from complete strangers if that makes sense. Any accommodations you guys use at work that have helped you maintain a job for the time being are appreciated too :) I'm a CNA and I love what I do so, so much but I need to find some kind of balance because my body is clearly slamming the breaks on me right now whether I like it or not. Also if anyone has tips or the experience of struggling with the concept that you have to do a little extra to take care of yourself compared to a 100% able person. I'm at war with myself trying to see it as giving myself what I NEED but there's a little voice in the back of my head telling me that it's overdramatic despite all the evidence that I do in fact have multiple chronic illnesses.

I have official diagnosis of POTS and hypermobility

Doctor suspects hEDS and fibromyalgia and those diagnosis are in the process of confirmation. Biological mom has all the same problems (including hEDS)

We are trying to figure out what exactly caused my last flare, prednisone literally relieving almost all my pain at the start of the taper points to inflammation. Positive ANA titer 1:320 but no antibodies. I have a lot of appointments to go to.

Posted Apr 8, 2025, 9:12 PM UTC

12
Loading comments…