r/breastcancer•
simonav101

Arm and hand problems after radical BMX?

Diagnosed Patient or Survivor Support

50F squamous cell infiltrating carcinoma RH+ stage 3c. Biopsy said almost 4cm after a full year of doctors stating it was nothing because "it hurt". Had DMX last august (BrRCA1&2 positive) without reconstruction as I just wanted to never see a hospital again. They took 6 lymph nodes next to BC but they were miracolously clear. I was suffering from severe cachexia at diagnosis time and during surgery and just now coming back from it as I've put on decent weight. Energy is better, last scan was clear and I feel terrified of the one coming up in a few weeks as I'm just not well. I read lots of posts of ladies going back to work, working out, getting life better once the cancer is gone but I feel like everything is a struggle. And my arm does not work as it did. I'm having lots of neve pain as feeling comes back but the worse is the "arm energy" that's just not ok. I work with my hands with caly and I have to take constant breaks. If I don't wear the compression I start to swell fast and I'm also getting weird "lumps" im my neck and back simce surgery that swell and burn to the touch and no doctor can figure out what they are. Blood work seems normal. Is anyone else experiencing long lasting weirdness? I used to be super active, running, gardening, workouts... Now I'm happy I walk regularly. But I need to make an income and I'm not sure how to achieve it. Thanks for letting me rant and fir all your sharings here, it helepd me a lot as I've been reading many of you for the past months.

Posted Apr 8, 2025, 9:17 PM UTC

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