r/cfs•
Serenitymcw

Going on vacation soon with CFS and Long Covid- tips please!

Advice

Hi I’ve had cfs for over 20 years it went into remission a few years after I was diagnosed. I got the covid vaccine in Jan 2021 and by March 2021 I was ill and my cfs reactivated. It has not stopped since. I have long covid from post vaccination syndrome. My flares are unpredicable and happen even without activity. I’m having one now actually. I sleep a lot when it’s active.

I haven’t traveled on a flight for over 10 years. A few things I gathered that I will be implementing is minimizing activity the week before. I am going to start packing now (it’s May 12th) I am very sedentary. For the next month I am using my pedal bike so my body isn’t shocked. I read about tsa cares and although I don’t want to, I think using that will help.

Has anyone used tsa cares before? Does anyone have any advice or ideas to minimize possibility of a flare? I’m trying to think things through without obsessing over it! We will be in warm weather which I hope will help as that has always made me feel better. Also if anyone has any tricks or things that have helped in the airport or to bring with them I would appreciate anything. Thanks so much!

Posted Apr 8, 2025, 9:21 PM UTC

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