I got my NHS autism assessment consultation on the 15th of April, should I tell them I was diagnosed privately, go with the assessment or say I don’t need it?
I was referred when i turned 18 (March 2023) through my GP and later on my own (6 months after, September 2023) because I could self refer. I think the one I sent in was the one I got so it was exactly 18 months wait.
The thing is that I was diagnosed June 2024, I found out the government were trying to pass a legislation to ban autistic people from transitioning at some point, afaik it didn’t pass for adults but it got me scared. I still needed to know so I got diagnosed privately, then with ADHD in August. I did them close together because I knew I’d asses for both and I’m inpatient.
I started T just after I turned 17 with GenderGP, along with many others. I’d not have been diagnosed if I didn’t start T because all I thought about was T back then. My GP never said anything about it and allowed me to start Nebido with them last January. I’ve just received my GIC Endo appointment for May, quite worried about what will happen then.
Anyways, been hearing about the gov trying to ban autistic people and maybe those with ADHD from medically transitioning so I obviously don’t want my diagnosis on their record, in order to start meds they had to know of my ADHD but I’m worried about them know I’m diagnosed autistic and tried to make excuses for me to come off T.
I just don’t know what to tell them at my appointment, I’m already diagnosed so I don’t need this assessment anymore or maybe just say I’m not diagnosed so they don’t put it on my record for the reasoning but I also don’t want to look like I wasted a space on the referral, like someone else could have that appointment, you know? It’s too late to cancel because it’s in less than a week now. I have no idea what to do about it.
Going along with the assessment process would be a waste of time and I’d rather the time be giving to someone who’s not diagnosed yet. I just don’t want to tell them incase it ruins my future on T. Thanks for reading, sorry it’s long
TL-DR: got diagnosed autistic privately but received my consultation appointment for it on the NHS but it’s too late to cancel and don’t know how to explain to them I don’t need it without them putting the reason why on my NHS record incase it might effect the GICs decision on taking over for my T.
Posted Apr 8, 2025, 9:23 PM UTC