Been offered an HSCT trial

Treatment

I relapsed on ocrevus earlier this year after 4 years on it. It was a pretty mild relapse but it scared me. I’ve been almost symptom free since my diagnosis 5 years ago. My amazing neuro referred me to the leading clinical trials neuro here in Sydney and I’ve been offered a spot in both an HSCT trail (testing the difference between two different types of chemo) and a CAR-T trial (phase 1).

CAR-T trial is much less intense. Only a month of work and minimal side effects. However obviously has much less research and might not work at all.

HSCT is far more risky but I feel more comfortable with the results. I would have to take a significant time off work though.

I’m 24 and want a long life, which is why HSCT is appealing to me. Both trials are free and I can probabaly afford the time off work.

What would you do? Anyone had HSCT?

Posted Apr 8, 2025, 9:24 PM UTC

921
Loading comments…