Keep up on your appointments and follow ups!

I’ve been diagnosed and on a beta blocker since 21.

35 now.

Moved on to the burnout phase despite diet and exercise and a full HF medicine stack. My left ventricle went from 2.2cm to 1.5

Ejection fraction dropped to 32. Confirmed by mri and echo. CPET V02 max of 13.9.

Strangely, no real symptoms doing everyday things or mild exercise but going on the transplant list next month at an HCM center of excellence.

Such a strange condition. Luckily this does not happen to everyone but keep up with your regular appointments! We wouldn’t have caught this.