r/ehlersdanlos•
iwinalot7

Ivabradine has made me into a whole new person

Discussion

I was diagnosed with POTS and later EDS in 2019. Ever since then I suffered a slow decline into non functionality. In November I started a new medication called IVABRADINE.

Ivabradine is a medication for heart failure which is sometimes used in the therapy for POTS and lemme tell ya it is life changing for me.

Ivabradine has made my POTS a background concern, as opposed to a constant thing I was aware of and managing. I am exponentially more capable than I was in the last 6 years. I can keep my bedroom and bathrooms clean consistently. I am doing dishes, cooking dinner. Im going for long walks with my family, walking around the mall, etc. I feel I have regained a huge amount of function that I had thought was forever lost.

It has felt like an all around improvement to all of my issues. My stomach is not so sensitive. I can handle temperature changes, I can even handle the cold again.

I wouldnt say my POTS is gone, but it DEFINITELY feels in a position that it can be improved, or at the very least I am happy with the fucntion I have currently regained.

If you can I would highly reccomend bringing up Ivabradine to your cardio if you struggle with POTS. I genuinely wish I had started IVa sooner.

Posted May 7, 2025, 2:41 PM UTC

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