Infant with CHARGE Syndrome

Two months ago, my daughter was diagnosed with CHARGE Syndrome. She is deaf and has vision loss, among other health issues. My maternity leave is over and I am now on baby bonding leave for the next three months. I have no form of income besides what her father (not married) is making which is not enough.

Can my child collect any form of social security? Can I get something as a caregiver? There’s no chance I can go back to work anytime soon. I’m hoping work can put me on some form of leave for a few years while her health issues get resolved or lessen. Would that affect anything regarding me getting assistance?

I don’t know where to begin, I called the number for social security and it said the wait was over two hours before speaking to an agent. Should I wait the two hours or go to a near by office? I think it would be more beneficial instead of doing it online because I don’t even know where to start.

I will take any advice! Just trying to make ends meet.

Posted Jun 15, 2025, 3:06 AM UTC

151
Loading comments…