What’s worked for me

Symptom relief/advice

In case it helps anyone else!

Background/context: I got Covid for the first time (as far as I know) last July. I still don’t know how I got it, because I mask everywhere all the time, but I suspect it was at a drive through where they come to your car. My window was down, I was literally in the process of putting my mask on when someone suddenly appeared with their face in my window. 24 hours later I got hit with extreme fatigue and low grade fever. 24 hours after that, worst migraine of my life and sore throat, tested positive. I immediately called telehealth and got Pax, did the vitamin D thing. The acute phase lasted three weeks for me, mostly fatigue and severe upper respiratory stuff. Within a month, I knew I had LC. I have POTS, ME/CFS, MCAS, a bunch of new gastro and skin symptoms, and had a flare of fibromyalgia, which has been in remission for a decade. I kept working because I had to, but had severe brain fog, cognitive impairment, brand new depression and anxiety, extreme and persistent fatigue, plus all of the symptoms associated with the conditions listed above. I couldn’t stand long enough to make my own coffee in the morning. I was sleeping all the time. Started using a cane and a walker. Couldn’t eat anything without extreme bloating. Couldnt be in the sun at all. Couldn’t make it through the day without multiple naps. Lots more but you get the idea.

Then, a few weeks ago, I turned a corner. I don’t feel a lot better but I do feel better. I can do more without crashing, crashes seem milder, cognitive functioning seems a little better, and my mood is better. All of my other symptoms have gotten milder.

Here’s what I did that finally helped: -finally titrated up to 6 mg of low dose naltrexone a day and got to baseline (it took me forever to titrate up, because I’m so sensitive to everything, I had to go up .25 at a time and then wait at least 10 days to get back to “baseline”).
-started eating oily tinned fish every day. -nicotine patches: 5.5 mg worn 9am to 9pm.

I also take the following supplements daily: Xyzal allergy pill, quercetin 2x daily, probiotic, NAC (3x daily), omega 3 plus curcumin, fermented B complex, magnesium glycinate, GABA.

I know this may not help lots of people but if it helps even one, it matters. Like I said, it’s only been a few weeks. I’m curious to see what happens overtime but the wild thing is that when you feel like you’re on death store every single day, even tiny improvements make a huge difference. Good luck and godspeed, friends.

Posted Jun 23, 2025, 4:14 AM UTC

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