Unsolved medical case in 20 year old male

This is going to be a lot.

I went to Kansas in July of 2024. I was hoping to pitch in front of MLB coaches and I thought I was ready. I was squatting 350 pounds, doing 30 pull ups in a row, doing 200 pushups in a row, etc. I was in great shape and felt even greater. Well, on my way up there, I had a severe nervous breakdown. I had people in my ear telling me I would break down on the car ride and have no money to get back. Once I made it to Jackson, I took a wrong turn and lost it. I was fully convinced everybody telling me not to go was right. I started crying uncontrollably all the way to Missouri. After I stopped crying, I had an energy crash. I had to pull over and close my eyes for a few minutes, then I pushed through despite being extremely tired. I made it that night and felt fine considering I survived the 14 hour drive. 

I had no immediate symptoms, but I went to the gym after a week of me being there, and when I tried to squat, I noticed my legs were severely weak. I couldn’t get all the way down without shaking violently (with no weight). I didn’t think anything of it and carried on. Then, after another week, I decided to come back home and skip the showcase. I got no sleep the night before I left. I slept maybe 2 hours. So, I drank a strong coffee my host family made and pushed through once again. On the car ride, I experienced the same sudden fatigue where I almost fell asleep behind the wheel. 

When I made it to the Jackson area, my feet went numb. They fell asleep so I got out of the car and walked around for a bit, but every time I sat down, they kept falling asleep immediately. Fast forward 2 weeks, they were still asleep. Every time I tried to walk, my legs would give out. When I laid down, my legs would jerk randomly. My feet to my calves twitched and were weak. Then, the fasciculations traveled up to my head. My whole body was twitching and I developed severe vertigo. Then, I developed weird symptoms like light sensitivity, hypersalivation, trouble swallowing, my jaws became weak, the muscles of my thumbs became weak, and both would fatigue immediately upon use. I had a stroke like an episode one night where half of my face went numb and I couldn’t speak without slurring. I then started checking my blood pressure and it was rising all the way to 190/135. I started having severe presyncope and very blurry vision. Of course, this sounds neurological, however, I started developing things like extreme GI distress, excessive sweating, heat intolerance, dysautonomia, etc. Everyone told me it was anxiety. So, I started begging for tests and documented everything. 

For months, I had presyncope and other neurological symptoms, but in December-January my symptoms cleared up almost completely. I gained a lot of weight and felt very good. However, at the end of February, I woke up with another stroke-like episode. I woke up with tingling in the bottom of my feet, vertigo, different pupil sizes, unilateral weakness and tingling, severe nausea, etc. I also had a severe prickling sensation in my feet and upper back. Once again, I was told it was anxiety. I got put on Prozac and Klonopin, but nothing helped. I developed foot drop and atrophy in my right leg and the neurologist thought it was ALS. Right after this episode, my quads started cramping when I tried to use them, and my chest muscles did the same. Quickly, I lost the muscle mass I had gained over the prior months. 

I haven’t seen them since, but my foot drop went away. I have since developed severe cardiovascular symptoms and the neuromuscular symptoms on the right side of my body switched to the left side. Cardiovascular symptoms like blood rushing to legs, I can’t sit or exercise anymore, and more. I have weird sensations in my head, I have spontaneous trouble swallowing, my pupils will be the same and then be dramatically different, my chest always hurts and feels full, and more.

I have bad exercise intolerance. I will feel faint, dizzy, or like I’m having a heart attack. When I try to run or something, I get dizzy and my heart feels like it is cramping. I will randomly get weird sensations of weakness in my spine. It travels down and feels like I am losing control of my body but it is short lasting. There are more things I have not mentioned or forgotten about, for example, when this all started and the twitching travelled all over, it felt like my body was shutting down. All muscles felt paralyzed until I tried to use them. 

My lungs are not functioning properly, my chest hurts, I have dysautonomia, weird sensations in my head, etc. My quality of life is absolutely horrible and I am 21. I could see why people thought this was anxiety, but my visit with the pulmonologist and atrophy and foot drop confirm this is very real. My lungs are over inflated 148%, and when I exhale, only 70% comes out.