Dad and grandfather had ALS

They both passed before I was fifteen. I’m 30F now. It was a very traumatic experience for me as a child. I was always told growing up that ALS is sporadic in who it effects… until I went down a research rabbit hole recently and realized that it is probably highly likely that my family carries the genetic form of the disease. Which I also didn’t know was a thing. It finally hit me tonight and I am freaking out. I’ve been crying for the past hour and fighting to stave off a panic attack, trying to come to terms with the fact that I may very well have this. It’s stirring up horrible memories from my childhood when my dad was diagnosed. I have no one to talk to about this who understands. I can’t talk to my sister, as she developed a severe hypochondria anxiety from what happened when we were kids with my dad. I tried to talk to my mom and she basically told me to try not to waste my time worrying about it. My partner was very sweet in trying to make me feel better, but he doesn’t truly understand. I just feel so alone and scared. I’m struggling not to attribute every weird muscle ache or word slurred when tired as conformation of the disease. I think I’m going to see a therapist to work through this, and to try and figure out if I want to get testing done (I want to start having kids soon). I’m sorry for being a bit rambley, I just needed to get this off my chest so I could hopefully sleep.