I am truly at my breaking point. I had surgery to break stones in March after struggling with kidney infections since January and then finding several stones. When they got in, my kidney was full of blood and infection so they had to stop. Repeated in April and was successful. By May I was hospitalized for hydronephrosis and a severe kidney infection. And surgery again the first week of June because I had 2 large stones already again (9mm and 11mm) and had a stent put in. Pulled the stent a week ago. 

I had my uric acid tested, sodium, vitamin D, parathyroid. All were normal. My stones came back as uric acid but my levels are always normal. I am extremely careful about my diet, careful about my ingestion of animal proteins, watch my sodium intake, and drink more water than literally anyone I know. I don’t drink alcohol, soda, tea, or dairy very often (occasionally milk in my cereal).

This is literally what I strain from my urine almost daily. I am constantly in pain. I get horrible pain and bladder and kidney spasms. I get nauseated and throw up, and lately I’ve randomly been spiking fevers of 101 or greater with no explanation and my doctors either don’t think it’s a big deal or they just don’t know how to help me. The giant black Looking blood clots are newer and honestly becoming more frequent than the stones some days. 

This is literally ruining my life. If there’s anything anyone’s been diagnosed with that may steer me in a helpful direction, please let me know! I am so beyond tired. It’s taking a toll on my job and although I have an incredible manager, at some point they will be sick of me always being sick too. I just need some answers.

I’m at my breaking point