22M first waver. ~ 1/05/2020

I am 22male long hauling since January 20' first wave that hit New Orleans got walking pneumonia & didn't swab positive for anything we were swabbing for.

Currently in the process of being diagnosed with a neuromyopathic disorder, & an autoimmune disease entailing chronic immune-mediated fibrosing inflammation.

The amount of times I've been laughed at, screamed at, told I need psych meds, told I'm psychotic, told I'm intellectualizing, told by people outside of their professional scope that I need to see a psychiatrist, need to get on anti psychotics by my 2nd therapist, I'm psychotic but the PA in the ER doesn't know the words I'm using & I'm "much more intelligent than she is..."I can tell by the words you're using & your vocabulary you are extremely intelligent & you're saying things I don't understand, so I'm not going to involuntary baker act you, I will allow you to choose which I don't do with patients."" Then gave me a benzo & left me to get carted to the psych ward & told the same shit & drugged up.

My chest is heavy... Literally, right now, constant chest pain, constant SOB, constant nerve pain, constant pruritus.... Constant everything. I shit myself standing up, I shit myself sitting down, I shit myself standing & moving my eyes left & right, I shit myself in bed.

I pee myself in bed, I pee in my car on my car, I pee in alleys, I don't have bladder control, or sensation.

I've been strongly asserting doctors these points. It has taken 6 years. 6 years of pain, insomnia, delusion, trying to get people to realize everything I'm saying I am not deluded, & they finally believe me... Some of them.

Some of them I'll address by name in my letters, I have all of their names memorized from the games they play with my health. & They will receive these exact words.

Thank you so much for pathologizing, psychiatrizing, & literally being anti-science in medicine.

I fear no words I say will cure your derision.

I'm in the bathroom sitting outside the shower trying to get the heat & humidity to help stop pain & ENT issues. Nerve pain, bad itch, can't breathe. I'm just gonna start sending all this straight to doctors & saying ok .. when are we allowed to treat pain without giving patients serotonin syndrome & nasty side effects. 3+ years of chronic pain moderate-severe as in I'm not normally bedridden any more than 2 months of the year. But during my bad months sometimes I don't leave the house, or room, because I have hypersomnia, insomnia, chronic pain, CPTSD all treated very poorly. What else do I have to say.