Word of Advice
From someone whose symptoms began 5 years ago mainly of which we blank mind, memory loss, and Anhedonia. PLEASE THINK TWICE BEFIRE YOUR EXPERIMENTS. Please please please learn from my mistakes. I experimented bc I likely had encephalitis and I wasn't receiving help from doctors. Symptoms progressed and I got desperate. Just like many of you. -going on and off meds was very bad. -iron infusion was one of my biggest regrets.. -I put that up there with getting a uterine ablation -lumbar punctures shouldn't be given out like candy, you can have a leak that goes on for years and it can mess you up if you have connective tissue disorder like EDS.
- coffee enemas, if you do them don't over do it and use the THIN and FLEXIBLE tips.
- don't eat borax
- don't over supplement. Seriously, it's hard on your organs.
- I took too many antibiotics in the beginning bc I thought it would help UTI/Lyme issues. I was certain I had an infection attacking my brain. But now I can't take any antibiotics.
- Don't keep trying something that gave you a bad reaction. I did this with copper.
- It's not always a herx reaction, you may be harming yourself.
- I regret not saving my money and traveling to get help from better institutions and doctors. Staying here killed me.
- Ivermectin... no. Unless you legit have parasites. Did you know it can cause toxic encephalopathy and hepatic issues?
- If a professional isn't hearing you - fire them. Immediately. You're the boss.
Things can always get worse. Trust me. I care about you all and don't want to see you worse off. You deserve to get better.
- I tried fmt and IVIG/SCIG. I tried HBOT. Many things. I think what damaged me the worst were vitamins. And having untreated underlying health issues.
And DONT listen to ehat others think you need to do wirh your body. They aren't in your body. The gaslighting can be so terrible. Everyone thinks they know everything. These are my experiences. But some of these are common sense and my common sense went out the window at times bc I wasn't thinking straight. If you have anything to add feel free in the comments.🩷
Posted Jul 5, 2025, 10:26 PM UTC