Doctor Vent
Hoping for some advice or just a listening ear. I just went to my GI today because I’ve seen an allergist, two rheumatologists(one at a teaching hospital), my primary, and a urologist in the past 6 months. Also went to urgent care and a PA. Maybe more I can’t even remember. The final rheumatologist said I am probably just having rare crohn’s symptoms and possibly vasculitis. She said my case was too complicated because lab work only shows inflammation. That I just needed to see my GI and possibly switch biologics because entyvio isn’t good enough for me even though GI symptoms are fine.
My doctor today I asked to show him the photos of the crazy stuff happening to me. He looked quick and said I just had environmental hives but that it was “impressive”. I started crying because every doctor has said something different and it very obviously isn’t “just” hives. I’ve been extremely sick the past 6 months and continuously deteriorating. My body is slowly giving out and I’m having less strength than before. On top of a few other symptoms I’ve mentioned in previous posts. When he left he was like making fun of me that I just need to see an allergist and told all the nurses I was crying.
The only one who listens to me is my primary doctor now but there’s not a ton she can do. I feel like maybe I’m just crazy if all of these doctors won’t even try anything and act like I’m so stupid.
Posted Jul 8, 2025, 4:45 PM UTC