What do your non-TC seizures feel like?

Question

Currently working on scheduling an ambulatory eeg. I have a history of seizure activity in infancy and teen years but went at least a decade without issue. My symptoms have progressed/worsened lately, and I'm wondering if anyone relates to these type of episodes:

I’ve started having twitching in my left thumb with movement (action-triggered) and similar twitching around my right eye, cheek and around my mouth when I squint (my nostril flares and upper lip curls) — it’s reproducible but only happens during certain facial movements. If I squint my left eye there is some mild twitching around the eye but it's drastically less. These can be triggered at any time.

Today, I had an incident where it felt like my head was pulling to the left involuntarily. I could bring it back, but it was difficult and uncomfortable. This happened after an episode of feeling super spaced out, anxious, brain zap sensation, and a "woosh" in my stomach (like I was on a rollercoaster). I've had several episodes like this, except the head turning was new today.

These specific signs are new to me, I'm struggling to not gaslight myself into pinning it all on anxiety, even though medical professionals and people around me agree that this is not normal for anxiety.

Would love to hear about y'alls experiences! Much love ❤️❤️

Posted Jul 9, 2025, 10:31 PM UTC

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