18F Diagnosed with malig GIST spread to stomach

hey so I, 18F have yesterday been diagnosed with a Cancerous GIST that has spread to liver. Ive only had a hepatology appointment confirming what they have found but from what Ive been told by my hospital specialist this is extremely rare and ive been reffered to an oncologist this friday (they also havent told me the stage yet). The specialist did say there was possibly a pill i could take and then eventually get it all cut out but then he back tracked with “re-ask the oncologist these questions i could have it wrong because i dont know much about these tumours”, i have had the pains and proof of growth (tumour) for a minimum of 5years and it is 7cm.. just wanted to know if anyone had any information of things i should look out for moving forward with this or what to expected at this oncologist appointment, I do have a support person to attend with me but its still #teryfying

Posted Jul 9, 2025, 10:48 PM UTC

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