r/FTMOver30•
KaijuCreep

Had to stop my HRT for now and I'm upset about everything

VENT - Advice Welcome

About three weeks ago, I started feeling very out of it and dizzy, like a camera that's out of focus. My heart was racing, showers made me feel like I was going to pass out, excersing did nothing. I felt as if I were dying. I was drinking plenty of water and I regularly see an endocrinologist. Eventually I got so weak and dizzy I needed to go to the ER. I suspected it might be my hemoglobin, I knew it was higher than average but my endocrinologist didn't mention anything about it when I asked about it last visit, so originally I waited for the next six months as they said to do. For context, I've been on T for about 2 years now and have had no issues prior.

The ER and proceeding labs were terrible. I was misgendered the entire time and belittled. I had a clean bill of health otherwise, but as I suspected, my hemoglobin and hemocrit were way too high and it was killing me. Luckily I knew what to do for it, since the doctors wanted to send me to a cardiologist and other stuff outside my ability (I have no insurance), even after I told them about my HRT and showed my blood labs. I stopped talking my HRT afterwards, hoping it would help lower it.

I managed to find a blood bank that would take me, but I was chastised by the doctor there for being on testosterone, even if by prescription, and I was misgendered again during it. 5 days after, I'm FINALLY starting to feel normal again, but this was after days of feeling weak and dizzy after the phlebotomy, and 2 weeks of missing my HRT.

This entire experience has been a nightmare. I was terrified of dying, I'm upset my endocrinologist wasn't concerned about this or mentioned it despite me asking about it, I'm upset with how I've been treated by all these doctors, and I'm upset that I had to stop my HRT. I'm afraid of having to stay off it, this is the first time in my life I actually liked how I looked and I'm afraid a lower dose isn't going to give me the same results. It's better than being dead or feeling like a zombie, but I'm upset that this had to happen in the first place. I need to know if this is a normal experience, or if I'm an outlier. Either way, I'm slowly recovering and thank you for listening. My next appointment with my endocrinologist is a week from now, I'm hoping I can at least still take my HRT.

Posted Jul 17, 2025, 8:29 AM UTC

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