Diagnosed 4 days ago

Surgery related

Hello, everyone. I am new here. I recently had surgery to remove a solid mass that was 9.1 cm 4 days ago. Of note, I am 23. I was diagnosed with PCOS last year and my doctor did not do any blood work or perform a physical exam, and my ultra sound just showed a small 4 cm mass with septations, which she said would probably resolve on its own. So flash forward a year and it was showed that I have a 9.1cm mass and a 5cm cyst on my right ovary. I was then referred to see an oncology gyno. I saw the oncology gyno and he was very concerned for malignancy, even though I was told by others that it wasn’t really plausible given my age. I was scheduled for a right salpingo oophorectomy, and he scheduled me to have surgery the following week. I had surgery 4 days ago and was able to keep both ovaries! I just lost my right fallopian tube. And the mass also wasn’t malignant! It was an endometrioma. Along with that, I had another endometrioma inside of my right fallopian tube, and cysts on both ovaries. My tube and tumor were also twisted around my appendix. During surgery, it was discovered that I have stage 4 endometriosis. I had endometriosis on my ovaries, right fallopian tube, my pelvic peritonium, appendix, and omentum. My surgeon said that it was one of the most severe cases he has seen, and it is even more concerning because of my age. This also progressed this badly in only one year. Does anyone else have anything similar or anything to make me feel slightly better?

Posted Jul 19, 2025, 7:40 PM UTC

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