I need help please or advice

Hey everyone.. i need help and advice please! Im crying all day in my room, no one understands me 😞

I have ME/CFS, Long Covid, POTS, MCAS, and persistent post-exertional malaise (PEM). I experience daily debilitating fatigue, hypersensitivity to stimuli, and severe crashes after minimal effort, im bedbound and symptomatic all the time. My heart is pounding, i have tinnitus, i dont know from food or PEM or from What… im just staying in bed and even going to the toilet makes my heart goes up and pounding.

I have Mast Cell Activation Syndrome (MCAS), which causes me to react to many foods, medications, and environmental triggers. I am extremely sensitive to medications and have developed tolerance to sleeping pills (benzodiazepines and Z-drugs), which has made my condition even more difficult to manage.

What should i Do or try? Ldn and guanfacine? I cant stand this torture anymore im suicidal i dont have energy to suffer like this. Horrible state.

Someone can help me please? I dont have a for my body to be Calm 😞 i cant get out of the house from months 😞

Thank you ❤️

Posted Jul 19, 2025, 7:43 PM UTC

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