I need advice, Please

Where I currently am now. I'm crying while typing this. August 4th, I was extremely stressed with a college issue. I was stressed, anxious, ranting on the phone constantly and walking around and sitting in positions that made me sore. I had a shitload of caffeine that day, was wearing tight pants, running around a lot at work (I work at a daycare). I used an ice-pack at work that helped for 25 minutes. I got home, and notice there is now a dry, bumpy area on my labia minora probably from the ice pack. It's so bad I can't move, sharp pains on both sides of clit. I can't sit, especially can't lean forward. I'm either standing or laying down. I went to the ER, they gave me toradol, Ibuprofen, and Lidocaine. All negative for infections. I'm getting more and more scared because there's now a dull pain in the perineum and occasional pain in the anus. My lower back hurts and I don't know what to do, I see Gyno, Uro, Pain Management all next week. I have college coming up. I'm so scared I've come to the point most of you are at, and I just ruined my chance at a full recovery. Here is my history below, please I'd appreciate it if anyone gives a read:


1. I'm 18. I've had a habit of syntribating and holding in pee since I was 4. Syntribating is a form of masturbation where you squeeze your legs/thighs together, and flex your pelvic floor muscles. 

2. I had a recurrent uti problem at the end of my sophomore year, 2023 June. Eventually UTI disappears, and the burning stays. I realize now this could have been a muscle spasm that never went away, because of above.

3. I was diagnosed with interstitial cystitis. Had the burning problem for some time. It's all a blur now, but I had a cystoscopy last year that completely put me into remission. I was in peace for I think, last year April and May. 

4. One night, I had extremely rigorous penetration. I'm not sexually active, I was a stupid teenager messing around. Home-made dildo, tip was sort of spiky, probably caused damage on the inside. Brought me back into a horrible flare-up, the burning, internal burning of the vagina, everything. 

5. I had a second cystoscopy that made it worse. A knife-feeling in the urethra everytime I peed, the constant burning. I eventually was diagnosed not with IC, but with Pelvic Floor Dysfunction. 

6. I should have found Pelvic Floor Therapy a long time ago but I just didn't. Frankly, time went on and the burning got better. Currently it doesn't even bother me. I think I was close to remission even, but I still kept on with the masturbation and penetration at home. 

7. I don't remember now, but I remember in 2024, this sharp pain in the left side of my clit would sometimes appear. It was random, when I was walking too fast, running a long time. I mentioned it August 2024 in this post below:

https://www.reddit.com/r/Interstitialcystitis/s/KTUuf0DLPc 

I don't know if I've had pudendal nerve entrapment all along.

8. August 2024 I bought a sex toy. This air-suction clit thing. I used it, was way too overstimulating from the start. Caused cold tingling feelings down my leg, clit felt like it was being suffocated in ice. Don't know what I was thinking, pushed through and still used it, often standing up which tensed my pelvic floor muscles and abdomen A LOT. 

9. January - February 2025, I notice this heavy feeling in my abdomen all the time. I notice that after penetration, I actually feel better afterwards, like relaxed, but vaginal area still irritated which usually just cooled down with some ice and a Tylenol. Urologist said I have a hypertonic pelvic floor.

10. I stopped using the toy because it just plain hurt around June-July 2025. I should have picked it up by now already. July 20, I notice that my clitoris is kind of sense-less, or rather doesn't feel healthy. It's kind of painful to the touch. It just doesn't feel good. 

11. July 23rd was the last time I had any penetration. I felt an extreme sharp pain inside the vagina, under where the right side of the clitoris would be. I kept a pain log in my notes for the entirety of this week, which is the images I attache. 

12. August 3rd, I actually felt great. I talked with a Pelvic Floor Therapist, got some meds  (Tizanidine, Amitriptyline, Baclofen). from Pain Management. I was honestly feeling better already, it wasn't bothering me that much and I even saw improvement. Day felt almost normal actually. Now scroll back to the present ^





