r/Epilepsy•
steeener

How to support my friend with very frequent PNES seizures

Support

Hi everyone! My best friend has had epilepsy his whole life. He had some seizures as a child, none really for the rest of his childhood until college… then he had a good amount of grand mal seizures during that period. After that, he had been over 2-3 years seizure free. But now, he’s been experiencing severe PNES (and a couple grand mals sprinkled in) according to a week long sleep study in the hospital due to the trauma of… having seizures, of course.

I am just lost on how to support him and his amazing wife. It has been months of him experiencing several PNES seizures per day. Sometimes they last a few seconds, sometimes they can last hours. Hours! Leaving the house feels almost impossible and same with work for him. In the beginning I sent him some meals and an uber gift card for appointments. I have a hangout scheduled with him this weekend to hopefully just make him laugh and bring him joy. What else? What else can I do? My heart is breaking and I hate watching him suffer. Thank you so much 🥺💔

Posted Aug 8, 2025, 9:06 PM UTC

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