Feeling exhausted. No one is listening.
I've had symptoms of ear fullness and tinnitus for 7 years. I've had off and on vertigo for that amount of time as well. Recently, I've had vertigo for about 6 weeks, almost every day. I've had MRIs, hearing tests, got a probable diagnosis of meniere's disease - but here's my question, if everyone in my family is diagnosed with migraines, why would I have meniere's disease and not vestibular migraine? When I say everyone, I mean everyone. Not just my immediate family but extended family as well.
I have all the classic migraine symptoms - I see spots, blurry vision, tunnel vision, sensitivity to sounds and smell. I even have a history of chronic pain on the left side of my neck and shoulder, which is where my ear problem is. I feel like I'm not being taken seriously because I don't get head pain very often. I have a history of headaches and migraines, but not that commonly. I have a history of grinding my teeth, but that has been dismissed.
I've been to the ENT and today went to the neurologist. She told me that I can't have vestibular migraine without pain. I just read Heal Your Headache, where the author notes that many people are misdiagnosed with meniere's disease when they in fact have vestibular migraine. I understand that both can coexist. Maybe I have both. I am so frustrated because no one is helping me and I keep getting passed around.
I'm a very active person. I love running and going to the gym. I ride my bike all the time - even to work. Lately I can barely move. I can't get to work and I can't be at work without having an attack. I don't know what to do. I eat a very healthy diet and have started the migraine diet. I don't drink coffee or alcohol. I don't smoke. I regularly exercise and I am not overweight. I've been gluten-free for 6 years. I take meclizine when I get vertigo. I don't know what else I need to do?
If you stuck with me this long, thanks for listening.
Posted Aug 14, 2025, 12:27 AM UTC