De Quervians for EDS ppls

Seeking Support

Hi, I'm here for questions to see if any of y'all have had the release surgery or done the injections? I have it really bad in both my hands. Any, and everything, causes me pain. Scrolling on my phone, typing, holding something, cutting my food, ECT. My thumb muscle swells up and it's like a thousand needles and a hot poker are being stabbed though it. I can't use any kind of KT tape bc my skin is too sensitive. I use compression gloves, on opposite hands since it actually gives me more thumb support, and sometimes brace them. The only things that help is rest and ice. I also take some nerve medicine, that helps a tiny tiny bit. But how the hell am I supposed to live my daily life and do nothing with my hands all day everyday? I'll sometimes sleep with a brace at night too. I need to be able to care for myself and my family. Have any of y'all had success with injections or the release surgery? If so, how was your recovery? Having severe chronic pain throughout my body is already bad enough, but not being able to use my hands at all makes life unbearable.

Posted Aug 14, 2025, 12:37 AM UTC

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