SSNHL- I didn’t even know this was a thing

33F with SSNHL. I have always had excellent hearing, so when I suddenly started hearing ringing and a fullness in my right ear, I knew something was off. I got to the physician within 48 hours, he put me on steroids, and got to the ENT a few days later. This happened right before the weekend, of course, so that added a day or two to the whole ordeal. ENT gave me a hearing test, which showed I had a “profound” loss of my right ear, 95dB. He says I may or may not regain some or most of my hearing. He can’t say what will happen, but gives me more steroids and orders an MRI, and says to come back in 2 weeks. I’m on day 11 of steroids today. I’m starting to get bits of my hearing back. I’m getting a distortion of high pitch sounds, almost mechanical. Each day seems to be getting better, but the tinnitus is still present and I’m still struggling emotionally. I have never had any issues with my ears. I don’t get ear infections, I don’t even use q-tips to clean them often because I don’t produce much wax. I use ear protection at work and when I go see fireworks or attend loud concerts because my hearing means so much to me, I didn’t want to do anything that would cause me to lose any of my hearing. I’ve been so careful! This was a tragic loss to me and I’m struggling badly emotionally because of this loss. Have any other “young” patients here recovered all of their hearing after a profound loss? I need some reassurance. I see the ENT again next week after my MRI, so we will see then how much I regain. Becoming completely deaf in one ear was so unbelievably jarring and uncomfortable. I’m very happy to be making any progress at all, but I really need to hear some positive stories from people who have regained most or all of their hearing back. 2 weeks ago, I’d say I had above-average hearing. I just had a baby earlier this year and I have a 5yo, and the life adjustment has been just crazy. Thanks for reading!

Posted Sep 2, 2025, 3:27 PM UTC

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