Bad reaction to iron but desperately need it
I have a ferritin of 5 and I highly suspect me being iron defficient is contributing, if not causing my aka. The problem is, whenever I try taking iron supplements it rampens up my aka and gets 100x worse.
I thought I was healed after being completely aka free for a few months and then took 3 iron tablets on different occasions and thats when all hell broke lose. It was like taking those iron pills dysregulated my nervous system even more to the point I am now sensitive to EVERYTHING. This was 2 months ago. Whenever I try eating iron rich foods like liver, it gets bad again. My symptoms last from days to weeks after consuming anything with high iron. I am at a loss because I desperately need to up my ferritin but I just cant. I am dealing with extreme restless legs except it has spread throughout my whole body and is there 24/7. I am in agony. I really believe this restlessness is due to my extremely low ferritin.
I also suspect I have MCAS and I have heard of people reacting bad when upping their iron. Am I crazy for thinking about getting an iron infusion? Maybe I’d react better when the iron isnt digested? Any experiences?
Posted Sep 3, 2025, 6:15 PM UTC