Extremely afraid of vEDS

Hi guys! A few weeks ago I came across a post from someone with swan neck fingers. I have the same since I can remember. Someone in the comments mentioned that it could stem from Ehlers Danlos syndrome. I have never heard about it before, but ever since I have read that, I am sure I have it. I have a mitral valve prolapse, posterior vitreous detachment, I consider myself quite mobile, although only my fingers are hypermobile. I never had any joint related pain or dislocation. I have TMJ issues since I was 13. Lots of joints are clicking in my body. My veins are quite visible everywhere, but I have very white skin. I don't have vEDS facial features. After gaining knowledge about the different subtypes, it was almost like a shock to me to realize that vEDS can make your hands look aged. My hands and arms are very thin compared to my body, super veiny and with thin skin, wrinklier than other people's. My feet aren't hypermobile and look normal. I am a 30 years old female and gave birth twice naturally without an issue. Although after the second pregnancy it turned out that I also have a small umbilical hernia. Sometimes I have bruises from hitting myself here and there but nothing extreme. I think I also have blue sclera, but my husband also has it, and he is not hypermobile at all. My family never had any vascular issues, they are not hypermobile at all, but nobody has extremely thin hands like mine. I have severe health anxiety. When I mentioned my concerns to my husband he totally dismissed them, saying it is just another one of my episodes. I am really afraid at this point that I might have transferred such a serious genetic disease onto my children without my knowledge. Is that possible that I have vEDS at this point of my life without any arterial or organ rupture? Is it just hEDS or being generally more mobile than the average? Am I just making myself freak out? I know the best way to know would be getting tested, but it is close to impossible in my country. I am afraid of vEDS as I have read that it doesn't cause general hypermobility, only in the extremities and also makes hands look aged.

Posted Sep 3, 2025, 6:16 PM UTC

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