How Much Did It Cost You to Get Diagnosed with EDS/hEDS ?

I recently discovered that I have hEDS linked to COL5A1 — but I actually figured it out on my own after digging into my symptoms, history, and doing some research.

Now I’m wondering: How much did it cost you to get your hEDS or COL5A1 diagnosis, especially if it involved genetic testing or specialist evaluations?

I’m just trying to get a sense of how accessible (or not) this kind of diagnostic info is for others, since I know costs can vary wildly depending on the country, insurance, or method used.

Would really appreciate hearing what your experience was like — whether it was through a doctor, geneticist, or even a self-pay lab route.