My baby seems so uncomfortable and I feel so guilty.

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My full term baby has been in the NICU for a month now after being born with surprise spina bifida. He’s already gotten 2 surgeries and has been switched around from high flow to non invasive and now he’s intubated. These past couple weeks he’s just seemed so unhappy and uncomfortable. He cries when he wakes up and is always squirming around. It’s harder to hold him more than once a day due to him being intubated. I just feel so guilty and helpless. I can’t help but think it’s my fault he is struggling and has a life long disability. My husband is worried he will resent us in the future for “forcing” him to live a harder than normal life. Will this get easier? Will he be happy someday?

Posted Sep 11, 2025, 5:02 PM UTC

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