Misdiagnosis

Was wondering if anyone else went through periods of misdiagnoses before getting hit with the EDS diagnosis?

I became ill in my mid-teens and essentially got turned away by doctors after clear blood tests. I remember one GP telling me at 14 that I wasn’t really tired, I was “just bored”… 💀

Later on after having to really advocate for myself to be looked at properly, I was diagnosed with fibromyalgia at 18 by a rheumatologist who slapped me on antidepressants that have in total caused me to gain 15 kilos (30+ lbs) 😍 I was incredibly unwell for a long time and juggled that with my final exams and going to university. However, more than two years after that diagnosis I have found myself gradually being more able to be active and am consistently going to the gym to try and gain my strength back that I used to have and am weaning off the SNRIs to see how it will affect my symptoms.

Now in my early 20s, I asked for a second opinion because it just didn’t seem right to me. I was naively hoping it would have been something curable after all(!), but my new rheum demonstrated to me that I fulfil all the diagnostic criteria for hEDS. It was a bit of a shock, to say the least.

But yeah, how long did it take you guys to reach diagnosis? I’m guessing many of you had similar experiences with unsympathetic GPs? Xx