Me/CFS and b12 deficiency
(Repost from different subreddit)
Hi everyone,
All the medical professionals I’ve talked to about this just kind of point me to other professionals, so I was wondering if anyone had experience similar.
I recently found out my B12 is low but I eat all kinds of meat and fish, and my anemia and intrinsic factor tests were normal. I haven’t started treatment yet. Despite this a neurologist blamed my diet and refused to acknowledge most of my symptoms were textbook ME/cfs!
I get really bad fatigue and crashes after even small amounts of activity. My sleep is awful, I wake up multiple times a night and never feel rested. I also get pain in my hands and calves, and before a crash I always feel like the day before you get sick with a cold or the flu, like heaviness and sore throat and fatigue.
Has anyone gone through something like this? Did treating B12 help? And did the b12 deficiency stop or make getting a ME/CFS diagnosis harder?
Thank you for reading :)
Posted Sep 22, 2025, 12:10 AM UTC