Anecdotes needed - Awaiting Diagnosis
I had bloodwork done in January that showed a positive ANA titer of 1:1280 with a homogenous pattern. Additionally, my PGD2 urine sample tested high at 319 H (reference range: <175 ng/g Creatinine) and high histamine levels (N Methylhistamine 24 hr urine test) at 228 H (reference range: 30-200 mcg/g Cr).
I moved and was finally able to see a rheumatologist in my new city. My new bloodwork from Sept 25 shows a positive ANA titer of 1:640 with a homogenous pattern and a BUN/Creatinine Ratio of 29 (High: ≥28).
My bloodwork looks a lot more scary than my symptoms have been… My main symptoms revolve around painful urination (UTI and other gynecological infections negative), painful bladder, heat-induced neck rashes, brain fog, and general fatigue.
I haven’t been formally diagnosed with anything yet and am waiting for my follow-up appointment at the end of October.
From what I can tell as a newbie to this whole thing, is that my kidneys dont seem to be filtering properly, and I am a candidate for further Lupus testing.
So I guess my question is… Has anyone else experienced numbers like this with more minor symptoms? Is this common?
Happy to get any anecdotes or advice.
Posted Oct 1, 2025, 8:58 PM UTC