Failed Mesalamine Starting Entyvio Next Week
Need some motivation/success stories, about a month ago I posted about how I rather spectacularly failed mesalamine, presenting to the ER with acute mesalamine induced myocarditis and being admitted for a few days while the heart inflammation subsided.
My gastroenterology team has me scheduled to get started on Entyvio infusions next week, with a follow up infusion two weeks later before starting the pen. I’m 25 currently and switching over to my new insurance beginning of November, so we’re trying to get this ball rolling before I age off. I work local government so will have decent coverage when I switch over, but still stressful to deal with.
Currently I am half medicated taking just my 3 budesonide pills, and honestly my symptoms aren’t horrible currently. l am definitely still inflamed, but I am more solid than not. Prior to the heart inflammation, the mesalamine budesnonide was having positive effects on my IBD symptoms. I was diagnosed in August after my colonoscopy and immediately started treatment. Prior to that, I had not been solid since February, with my bowel movements progressively getting worse.
If any of y’all have any success stories with Entyvio I’d appreciate hearing them.
Posted Oct 2, 2025, 7:56 PM UTC