Sarcoidosis Co-occurring with RA
I've been sick for about a year. It was thought to be bad asthma and hives but I felt like there was something more wrong with me and got a second opinion when my immunologist started brushing me off. Long story short, I had a lung biopsy in July for Lymphoma which cameback negative but positive for granuloma's in my hiliar lymph node which matched what the PET and CT scan had shown. Prior to the biopsy I had been terribly ill. Sore muscles, chronic hives resistant to antihistamines, breathing issues, painful lumps under my skin just to name a few. My Pulmonologist refused to prescribe any meds or steroids because my symptoms did not add up with Sarcoid. He just kept taking blood and making me come back and doing nothing. I also received a message from him that was meant for another doctor in the practice basically down playing my symptoms and saying he doesn't think any of this is sarcoid. I immediately called him out and he tried to say he just meant that we have to look at all other possibilities. BULLSHIT! I got fed up with him playing games with my health and found a Rheumatologist that specializes in Sarcoidosis. When I saw her a few weeks ago she was in shock as she went through my file and saw how I had inflammation in multiple organs and how all of my blood work showed high inflammation dating back to June. She couldn't believe that no one thought to at least put me on steroids if even temporarily. She ran multiple tests and started me on prednisone. My test came back positive for Rheumatoid Arthritis. I already have a visible lump near my left thumb joint. The pain shooting from my wrists to thumb used to keep me up at night in tears so I was not surprised when she pointed it out. I saw her again on Friday and we decided to start me on MTX. I took my first dose on Saturday around 4pm and I handled it well (I've been way more nauseous and fatigued so this was a walk in the park).
I knew I had the Sarcoid regardless to what my idiot Pulm was saying but the RA caught me off guard. I was never expecting to have another AI disease!
Anyone else have RA along with Sarcoidosis? Does it make the disease worse?
Oh my Rheum randomly asked me if I was keeping this Pulmonologist. I think it was her way of letting me know he was no good! lol I had already begun looking for a new one because I didn't trust after he sent me the wrong message but I was waiting to see what the rheum said because I started to doubt my own symptoms since no one was listening to me!
Trust your gut! If you think your doctor is an ass, he probably is! Get a second opinion!! Trust your body. I've known since last October that something was wrong with me. It wasn't until I finally went back to my primary and she took me seriously. 1 xray changed saved me... find someone who will listen!
Posted Oct 6, 2025, 7:10 PM UTC