Advice for my husbands flare-ups?
Hello all! I’m looking for some advice or suggestions on how to help him when he’s having a flare-up. Sometimes they will be so bad that he can hardly move :( he gets really hot (or cold), his joints hurt and he said it’s a painful feeling that he can’t quite describe. He takes the usual over the counter pain meds, lidocaine patches and other topicals and I try to have him drink something with electrolytes because these flare ups seem to happen when he’s dehydrated or has overworked his body. He’s a tow truck driver so his body is constantly working and some days are really hard. His mom has Fabrys and she does the infusions but he refuses them, it’s just a personal choice that he’s made so I don’t push him on it. He’s only 34 and I’ve researched Fabry’s endlessly but it’s so rare that it seems the information on it is so sparse. Do any of you have anything that has helped you during something like this? I’ve tried and I want to help him so badly but I don’t know what to do :( any tips and tricks would be greatly appreciated. Thank you!
Posted Oct 11, 2025, 7:46 PM UTC