Anyone diagnosed with CD but later on found it was not?
I am still not 100% convinced i have CD. The movement specialist looked at me for about 10 minutes and said it was. I kind of agreed with him at the time but having done a lot of research I wasn't sure.
Even when i went for BOTOX the Dr. said they couldn't see much and maybe it had improved.
But when I sit and stand still i look fine. As soon as I move, look down or to the right the tightness starts.
So has anyone been diagnosed with CD but then found out it wasn't? If so, what was it?
Would all joint conditions be visible with an MRI? At first i was told i had stenosis. But then that seemed to get ignored.
It feels like every time i lift and turn my head to the right my nerves are being crushed, irritated at the base of the skull and this causes all my neck muscles to tighten.
I wish I knew for 100% certainty.
Posted Nov 10, 2025, 12:04 PM UTC