HYPER Pots?

So I’ve been going through a lot lately trying to get to the bottom of what’s happening to me.

I’ve been on a blood pressure medicine for years, before they lowered my dose on Halloween,

my last four readings were basically 120–125/80-85 & after they lowered the dose (assuming the higher dose was the cause of all of the lightheadedness) Now the readings are not so nicely stable.

I have ALL of the symptoms BUT my Systolic JUMPS when I stand vs dropping :(

Unfortunately, because of some computer breakdown/software issue in the office, I can’t do the 24 hour blood pressure monitoring before the weekend, like I thought I would be able to.

But Sunday into Monday, the doctor has me doing this urine test and there’s a lot of foods I cannot eat, medicines I can’t take. I guess it’s real sensitive test.

So I am grateful for the doctors taking this serious and ordering these tests to help me.

Has anybody heard of this before? And is anybody here going through anything similar? Were you on blood pressure medicine before diagnosis/after diagnosis?

Thank you 🦋